Brighton has not slept more than 10 minutes the last 2.5 weeks. Then Saturday the nasty rash below pops up. Apparently the poor guy has been suffering with joint pains and aches and general soreness with a disease called slapped cheek. He now has an itchy rash and a high fever on top of it and it can last months. Nice.
Sterling and Mama went to 5 hours of Myelo clinic today. He now has to get his legs serial casted once a week for the next 6 weeks because his feet aren't in proper alignment. If this doesn't work he will have to get a tension release surgery on his feet. He also has a 13 hour bladder surgery on the horizon. I'm just counting my lucky stars that this is only his 4th surgery and not his 30th like tons of Spina Bifida kids. The neurosurgeon covering his usual one was extremely surprised he hasn't had a shunt revision yet. So lucky and blessed for how great his health is considering all his trials and afflictions. His favourite part was getting x-rays and was above excited to see what his bones looked like!
We also had an epic accident of sorts: He was pretending to be an airplane full speed down the hall and would stop 1 inch from ramming my shins. I kept telling him up stop. He finally is going so fast and not looking that I just know my shin is going to break if I don't stop him. I put my foot out so the chair will hit the bottom of my show instead. Out of no where the chair flips epically upside down in 1 foot of room landing on his face. I unfortunately grew up around 4 brothers where accidents are hilarious and burst out laughing at the huge amount of ridiculous that it looked like seeing him fly through the air. I pull him up and he has a bloody nose and mouth and the first thing he says without even crying "That was not funny Mama! You shouldn't be laughing cause it's not nice". Yup, I am totally that person that laughs at inappropriate moments and will continue to do so.
Lastly, my motivation to write blog posts has somewhat waned since the weather has changed. We have pretty much spent all extra time playing outside or going for walks. Which means that posts are probably going to be pretty spotty for a long while. Sorry folks but I'm going to enjoy this warm weather while it is short lived.
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